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Archive for May, 2009

A good start:: Reversal Of Alzheimer’s Symptoms Within Minutes In Human Study

Learn about Niemann-Pick Type C

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This is huge because testing for Lysosomal Storage Disease’s (Niemann-Pick A,B, & C,Krabbe, Pompe, Gaucher, and Fabry) can help immensely for families and eliminate some struggles with “What is wrong with my child!”.  Even though many don’t have a effective treatment or cure, sometimes early intervention in the future could lead to drastic improvements in a child’s life if diagnosed.  What if knowing at birth something simple could be done to help them live a normal life and drastically give them a longer life until a treatment or cure comes about????

Please visit the article here: Mo. Votes to Add 5 Diseases to Newborn Screenings


Learn about Niemann-Pick Type C

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Message from one of the Mother’s who have twin girls with Niemann Pick Type C.  Please help by voting!  Thank you!

Dear Friends:

We have a very big meeting with Babies R Us next week in New Jersey to see if they will carry the BellyLaf product line.   This is our second meeting.   10% of BellyLaf’s profits go into research into Rare Diseases. Please help us out and vote “Use It” for our product on the Parenting Magazine Poll.

We have a competitor who keeps voting no for our product which can hurt our chances of getting picked up.

Please go to the following poll:  http://www.parenting.com/Common/commonPoll.jsp?id=293.

Vote USE IT!

Thanks so much for your help!  We’ll let you know if we get picked up.

Best,

Chris


Learn about Niemann-Pick Type C

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Frank Cazella & Andrew Misak are owners of Pieroguys Pierogies, LLC.  They helped sponsor one of events in Orlando, FL back in March 2009 for the Niemann-Pick Children’s Fund, Inc.  They make some killer food.  Check out what they are all about!  I am hungry just thinking about them!

What are Pierogies?

A Pierogi is a type of boiled dumpling made
from unleavened dough and stuffed with various ingredients. Pierogi are usually small enough to
be served several at a time. Though this
food has strong ties to Slavic culture, similar foods
occur in many cultures across Europe and Asia.

The outside of a pierogi is a type of dough mixed
from flour, warm water, and beaten egg.

The inside filling is prepared many different
ways depending on your taste. They can be stuffed
with sauerkraut, cheese, mashed potatoes, cabbage,
onion, various types of meat, vegetables or fruit.

Then the ends of each pierogi are pinched and
together the batch is put into a boiling pot of water,
fried in butter, or baked in the oven with other garnish.

Pieroguy Pierogies, LLC

Pieroguy Pierogies, LLC

Learn more about Pierogies here

Pieroguy Pierogies, LLC

sales@pieroguys.com



Learn about Niemann-Pick Type C

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